Progress

Emerson had his most recent modified barium swallow study on Oct. 2. We learned that he was sitting pretty comfortable with no decline in ability, but no improvement either. It was because of this, that our Speech Therapist Pamela recommended we challenge him a little bit - oh so catiously - by upping his thickened liquid by two ounces a day in the form of anything other than his formula (aka Kiddie Milk).

The rationale for this is that if we can give him an additional two ounces a day, every day for a month with no adverse side affects, then in November we can add another two ounces per day. With each ounce of thickened beverage that he consumes orally, we can then remove an ounce that he gets via the tube. In a completely perfect world, one could reason that if we could get him, albeit slowly, to consume all of his liquid in a thickened state - with no issues - then we could remove the tube. It's certainly something to work toward.

So last weekend we tried some organic, low sugar juice. Tonight, for the first time ever, Emerson had Grape Kool-Aid. Just two ounces, and he thought it was perfect. "That tastes really good, Mommy."

This is also the first night he agreed to reinstate the toilet for his more complicated waste removal.

Progress, no matter what form it takes, is progress.